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- About Marissa
- Chordoma Foundation
- How to Help
Thank you to EVERYONE who had anything to do with Saturday's benefit dinner. This was a huge undertaking and we had tremendous participation from so many people. Saturday's event was a huge success and was incredibly heartwarming and certainly proved that great things happen when we work towards a common goal!
One of our employee's, Ann Marie, recently discovered that her 12-year old daughter, Marissa, has contracted a very unusual form of cancer called Chordoma. Chordoma is a very rare (300 new cases per year in the US) type of cancer that occurs in the bones of the skull and spine. Marissa is already scheduled for 2 surgeries and a 9-week chemotherapy treatment regime at a Philadelphia hospital. The financial burdens of such a horrific diagnosis are very overwhelming as you can imagine.
Marissa has just finished the 6th grade at Boardman Middle School. She is quiet and reserved but has hopes and dreams like any other child. She loves the band "One Direction" and loves her iPad, playing the flute and the color pink. Please keep Marissa in your prayers and send a donation to help her and her family.
The Chordoma Foundation is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by helping patients to get the best care possible.
For more information about Chordoma, click on the logo at right.
- Location: Bones of the skull base and spine.
- Types: Conventional, chondroid, dedifferentiated.
- Incidence: 1 case per million per year.
- Average Survival: 7-9 years.
- Approved Drugs: none.
Chordoma is a rare type of cancer that occurs in the bones of the skull and spine. It is part of a family of cancers called sarcoma, which include cancers of the bones, cartilage, muscles and other connective tissue.
Chordomas are thought to arise from remnants of the embryonic notochord, a rod-shaped, cartilage-like structure that serves as a scaffold for the formation of the spinal column. Notochord cells normally persist after birth lodged inside the spine and skull, and rarely these cells can undergo a malignant transformation that leads to the formation of a chordoma.
Chordomas are generally slow growing, but are relentless and tend to recur after treatment. Because of their proximity to critical structures such as they spinal cord, brainstem, nerves and arteries, they are difficult to treat and require highly specialized care
How YOU Can Help
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